I’m jumping out of a plane!!!

I’m writing to friends, colleagues and some of my favourite ex-clients to ask for your support in a fundraising event that I’m going to be involved in on May 22nd – my 71st birthday So, there we were – three friends, sitting there having a drink in the Whitchurch Inn, chatting about charities and fundraising, as you do. Julie mentioned that she is involved in a Voluntary Service Overseas fundraising effort in our village, Whitchurch, just outside Tavistock. VSO has always been close to my heart and, as a Rotarian for 25 years, I have worked with a number of young people travelling abroad under the VSO umbrella. I…

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Cathy’s CLL Story

Hi folks, my name is Cathy. My cancer story began way back in 2004. I had moved to Tavistock in 1993 following the loss of my son, who was just coming up to his 16th birthday. I needed an income and realising that the massage therapy sl-qualification I’d acquired wasn’t enough. I started a small business making therapy couch covers and accessories. I’d been struggling with extreme fatigue, drenching sweats, had lost weight and felt as though I was surviving on neat adrenalin – I had an all encompassing internal earthquake going on constantly. I was 55 and menopausal, wasn’t this what one might expect? I eventually went…

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Leukaemia Care – You Matter Day

Leukaemia Care charity has organised a support day in Exeter On Saturday 15th June At the Mercure Exeter Southgate Hotel, Southernhay East, Exeter, Ex1 1QF.There will be talks by CLL/Leukaemia specialists and patients. Entrance is FREE, but should be pre-booked, so that they know the numbers attending.Talks on Fatigue, Diet and Exercise, and Sleep hygiene. Agenda We can discuss this at out own support group and maybe share transport.

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CLL Patients Experience Survey

Here is another way that you can help to get the CLL message across.   We have been approached by another pharma company who want to learn more about how CLL patients cope with their disease. They have asked us to send you the attached letter which explains clearly all that is involved – including a financial incentive!   If you want to get involved please contact Ian at Consortium directly and he will talk through all the details.   We do hope that you will will take up this offer.   Thanks   CLLSA trustees Survey Invitation Details

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Elizabeth’s Journey.

Hello. My Name is Elizabeth and I was diagnosed with CLL (Chronic Lymphocytic Leukaemia) in 1997 at the age of 50. I am married and worked full time. Here is my CLL Journey. In 1995 I had a malignant Melanoma excised. No further treatment was required, except for several years of regular attendance at the Outpatient Department at Hospital. In 1997 I went to see my GP. I mentioned that I was feeling tired all the time. Consequently I was referred to a consultant. After more tests the consultant confirmed that I had CLL. WOW was I shocked. I had not expected that. He gave me two pieces…

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Ron’s CLL Story

My name is Ron and I have CLL. In 1996 I was referred to dermatology because I had red swellings above my eyebrows, enlarged swollen earlobes, a swollen and red upper lip and the top of my head was red. Following biopsies and blood tests I was eventually diagnosed with discoid lupus. In 2003 the swellings and redness had worsened and my GP referred me back to dermatology. After blood tests I returned to dermatology to be told that I had a blood condition and I had been referred to haematology. During my appointment with Dr Copplestone at Derriford, I was told I had Chronic Lymphocytic Leukaemia. This…

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Nigel’s Story

By Nigel. A Member of the Derriford CLL Support Group and a person with CLL Having not been near a doctor’s surgery for nigh on 30 years I had a should injury in August 2017 that wouldn’t seem to heal. That prompted me, reluctantly, to seek help. I told the doctor that even “Taking ibuprofen like smarties didn’t seem to help”. He gave me an injection into the joint, which solved the problem. But he was concerned about kidney damage from so many pills, so ordered a blood test. Fortunately that test showed my kidneys were OK. But there was an anomaly with the blood test. Do another…

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CLL Members Conference 2018

  Join us at ‘ETC Venue Victoria’, One Drummond Gate, Victoria, SW1V 2QQ for the 2018 CLLSA London members conference. https://www.cllsupport.org.uk/civicrm/event/info?reset=1&id=49 8th November 2018, 10:00 – 16:00 hours The speakers at this event will be Prof Steve Devereux of Kings College Hospital and Dr Parag Jasani of UCLH and The Royal Free There is no cost to attend and a complimentary lunch and refreshments will be provided. However voluntary donations are appreciated, and donation envelopes will be available at the event. This is a great opportunity to meet others living with CLL and learn about living with CLL together, discuss latest developments and resources that are available to you. Places are limited…

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Living with Rare or Less Common Cancer – Survey

The CLLSA is a member of Cancer52 – a group dedicated to furthering the cause of rarer and less common cancers. Cancer52 is currently conducting a piece of work to help inform their contribution to any new Cancer Strategy that will follow the existing one, which runs until 2020/2021. To help inform their contribution they are looking at all the issues facing people with rare and less common cancers and consider what needs to improve. They now want to hear from people who are living with or have had a rare or less common cancer, as well as carers, about their experiences and how they think the experiences of future patients…

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