Ron’s CLL Story

My name is Ron and I have CLL. In 1996 I was referred to dermatology because I had red swellings above my eyebrows, enlarged swollen earlobes, a swollen and red upper lip and the top of my head was red. Following biopsies and blood tests I was eventually diagnosed with discoid lupus. In 2003 the swellings and redness had worsened and my GP referred me back to dermatology. After blood tests I returned to dermatology to be told that I had a blood condition and I had been referred to haematology. During my appointment with Dr Copplestone at Derriford, I was told I had Chronic Lymphocytic Leukaemia. This…

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Nigel’s Story

By Nigel. A Member of the Derriford CLL Support Group and a person with CLL Having not been near a doctor’s surgery for nigh on 30 years I had a should injury in August 2017 that wouldn’t seem to heal. That prompted me, reluctantly, to seek help. I told the doctor that even “Taking ibuprofen like smarties didn’t seem to help”. He gave me an injection into the joint, which solved the problem. But he was concerned about kidney damage from so many pills, so ordered a blood test. Fortunately that test showed my kidneys were OK. But there was an anomaly with the blood test. Do another…

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CLL Members Conference 2018

  Join us at ‘ETC Venue Victoria’, One Drummond Gate, Victoria, SW1V 2QQ for the 2018 CLLSA London members conference. https://www.cllsupport.org.uk/civicrm/event/info?reset=1&id=49 8th November 2018, 10:00 – 16:00 hours The speakers at this event will be Prof Steve Devereux of Kings College Hospital and Dr Parag Jasani of UCLH and The Royal Free There is no cost to attend and a complimentary lunch and refreshments will be provided. However voluntary donations are appreciated, and donation envelopes will be available at the event. This is a great opportunity to meet others living with CLL and learn about living with CLL together, discuss latest developments and resources that are available to you. Places are limited…

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Living with Rare or Less Common Cancer – Survey

The CLLSA is a member of Cancer52 – a group dedicated to furthering the cause of rarer and less common cancers. Cancer52 is currently conducting a piece of work to help inform their contribution to any new Cancer Strategy that will follow the existing one, which runs until 2020/2021. To help inform their contribution they are looking at all the issues facing people with rare and less common cancers and consider what needs to improve. They now want to hear from people who are living with or have had a rare or less common cancer, as well as carers, about their experiences and how they think the experiences of future patients…

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Successful first meeting of Our Support Group

We had a successful first meeting of the Derriford CLL Support Group at the Derriford Centre for Health and Well-Being. Over 60 people turned up to meet others with CLL, to hear a talk by Dr Sam Burrows and to share some food while having a natter and sharing experiences. I would like to thank Specialist Nurse Sue Gilbert for all her hard work in getting our support group off the ground, and to PDLF (Plymouth and District leukaemia Fund) for funding the event. The next meeting will be on Wednesday 10th October at 2pm (14:00)

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Derriford CLL Support Group – Launch Party

There will be a PARTY at the Derriford Centre for Health and Wellbeing. At 13:00pm on Wednesday 25th July Come and join us for a buffet and a talk on CLL by Dr Burrows, followed by an opportunity to meet and mingle with fellow CLL patients and their relatives. For more information you can email – susan.gilbert2@nhs.net  Or call her on 01752-431206

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Welcome all those with CLL

We are a group of folks in the Derriford catchment area who would like to get together to support each other through living with CLL: Diagnosis, living well, treatment and care.  

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